Why You Should Have A Tutor From Your School


As a student with low vision, I often struggle reading numbers and graphs in my classes.  This isn’t because of a math disorder, it’s just that I have trouble seeing. I was fortunate enough to have tutors, who were teachers at my school, that were able to give me extra assistance with my assignments and help me realize that while my eyes may not like all of the numbers and tiny font involved, my brain loves math, and I am quite good at it- I even scored in the 99th percentile for mental math on my ACT (more on those accommodations here). Here are some of the ways having a tutor from my school helped me succeed in the classroom. Please note that these tutors were at a paid private tutoring service, and I never had lessons in the school.

They know the curriculum

In my first school district, there was a standard curriculum that all of the teachers would follow, so there was little to no differences in course content between teachers. As a result, my tutor was able to easily see what we did in class that day and explain concepts I was stuck on.

More likely to understand disabilities

The teachers who do tutoring outside of school hours really do care about their students and are highly likely to follow disability accommodations. My tutors were always awesome about using large print and computer apps during our sessions, something I really appreciated.

Access to textbooks

There were classes where I did not receive accessible textbooks on time, and the teacher would be frequently referencing a textbook I couldn’t see. My tutors had access to the same textbooks and would help me work through practice problems, drawing the problems on the board or having me write/type them out.

A look inside the classroom

While there wasn’t a lot of variation with course content, the teachers were dramatically different. Because they worked at the same school, my tutors could come observe the classroom for short periods of time and see what was going on, something that was incredibly helpful when I was routinely given inaccessible materials.

Get assignments from the teacher

One time, I was given an oral quiz because the teacher didn’t have time to enlarge my assignment. I got a 5 on the quiz…out of 100. After my tutor heard about this, they were able to get a copy of the quiz from my teacher and then we made it into an accessible format.  The original grade shot up 90 points when I retook the quiz later that day, with accessible materials.

Help provide guidance

When I was in classes where my IEP was not followed, my tutors would give me and my family guidance on how to handle these situations, or give us ideas on what to say to administration. This was very helpful, especially when I was starting at a new school and didn’t know a lot of the staff members yet.

They can be helpful in stressful situations

I had a teacher make it abundantly clear to me that I would not be receiving accessible materials while in their classroom. Following this, my tutor received permission from the school to let me work on assignments in their classroom, removing me from the stressful environment and allowing me to focus on my classwork- which they enlarged for me. For more on my accommodations for print materials, click here.

Practice using assistive technology…or not using it.

If a student uses assistive technology or alternative technology resources in the classroom, a tutor can help the student learn to integrate it into the classroom, and learn how to use the different devices. And if the student has no technology in the classroom, like how I didn’t have a graphing calculator, then they can spend more time teaching the student how to do things by hand, a topic that some teachers may not cover.

Help demonstrate understanding

When I don’t receive accessible materials, I can’t complete assignments, and some teachers would assume this was because I was stupid, when the reality was that I couldn’t see. When I completed assignments with my tutor in an accessible format, I would get very high grades, which would serve as evidence that the content wasn’t the problem, it was how it was given to me- in small print I couldn’t reaed. Read more about collecting evidence for IEP violations here.

It shows the student is trying

We always let my teachers know that I was receiving tutoring once a week from a teacher at the school, and that went a long way in showing the teachers that I was trying, and making an effort in the class. We also told my case managers and school administration about my tutoring services, especially during IEP meetings.

Having access to tutors that taught at my school was an amazing resource that really helped me in the classroom, especially in classes where my IEP was viewed as “optional.” I highly recommend that students find a tutor like this- ask the teacher or head of the department at school for tutor names, or look at private tutoring places in town to see if there are any teachers from the same school, or at least the same school district.

Medical Emergencies in College


One night in November during my freshman year, I was talking to my friend in a different time zone when suddenly, I felt like I was about to black out. There was blinding pain in my abdomen that made it feel like I had gone into labor, been hit by a car, and shot, all at the same time. I had trouble talking at first because I was in so much pain. Luckily, I was able to quickly get medical attention and received a diagnosis for what was going on. Below, I have outlined the steps I took to dealing with this medical emergency, as well as other tricks I have learned from friends.

Call the RA on duty

I lived in a single room that had a bathroom separating my room from my resident advisor’s (RA) room. I texted her telling her to come in my room as something is horribly wrong, and she entered my room via the bathroom, and contacts not only the RA on duty, but also the head RA for the building since they had the most experience.  That’s three RAs involved in this situation, but normally one or two is enough. They took a note of my symptoms and call 911.

When one of my friends had a similar emergency and had trouble reaching the RA, they called the 24 hour housing desk for assistance, and the desk was able to contact the RA and call 911 on their behalf. While students can call 911, it is preferable that they tell the RA before doing so, or shortly after, so there isn’t a surprise ambulance or fire truck.

Collect documentation

While the other RAs called 911, I had my RA walk around my room and grab things I would need for the hospital. This included my medical and state IDs, which we put with my room key on a lanyard around my neck. Other things we grabbed included phone/iPad chargers, my blindness cane, a pair of shoes, and my favorite stuffed animal.

One of my friends keeps a folder with their medical history and other important information for paramedics next to their bed along with a pre-packed bag, so this information is easy to locate.

Ambulance ride

When the paramedics arrived, I explained that I was in intense abdominal pain, and mentioned that I had low vision immediately, because I didn’t want them to remove my glasses or have me sign a bunch of paperwork without explaining it to me first. I also told them I had been diagnosed with Chiari Malformation, but the pain I was feeling was something I had never experienced before. In addition, I requested they turn off the flashing lights on the ambulance while I was getting in, as I have photosensitivity. They were very understanding and honored everything I requested. It’s worth noting I do not have a medical bracelet. I rode in the ambulance alone, my RA legally could not go with me. Having the ID cards around my neck was very helpful as they were able to easily take down information. Also, while in the ambulance, I took a picture and sent it to my professor for class the next day, saying that there’s a strong chance I wouldn’t be in class the next day. I also sent the picture to a friend in the same class in case the teacher didn’t receive it.

Hospital

When I got to the hospital, I was immediately taken to an ER bed, and I again repeated that I had low vision and Chiari Malformation. Someone came in and read me all of the paperwork for consenting to treatment, and then I was able to sign everything. I also went over my allergies and past medications (I was not on any medication at the time), and then they started giving me painkillers and running tests to rule out things like pregnancy (my symptoms strongly resembled an ectopic pregnancy), alcohol, and drug related factors. Because I was under 21, I was seen by a mix of adult and pediatric medical staff.

Hi mom!

I called my mom from the hospital bed and explained what was going on. About four months earlier, I had been in the ER for similar symptoms but the tests came back inconclusive. She called a local family friend to come sit with me in the hospital while she drove up there. Having someone else there was extremely helpful.

Tests on tests on tests

Each time I went for a test, I would remind the person running the tests that I have low vision and can’t see very well with or without my glasses. Eventually after several different tests, one which involved me drinking 64 ounces of water in less than ten minutes followed by an additional 24 ounces, they finally figure out what happened. I had at least four large ovarian cysts burst all at once (my friends and I would later refer to this experience as the time I exploded), and my mom arrived at the hospital just in time for that diagnosis.

Discharging

I was discharged about twelve hours later, and received prescriptions for me to fill. My mom and I were able to fill the medication with no issues, but had I been alone and able to walk, I would have taken a university shuttle to the pharmacy. The hospital staff said I had to go home, not to my dorm, to recover from this, so I went back in my dorm to grab necessities and then left. I contacted my other professors to let them know I would be absent from class indefinitely and attached hospital selfies from earlier in the morning. This was temporary documentation until my mom could scan in the discharge papers. Other ways my friends have documented their hospital visits besides hospital selfies include sending pictures of hospital bracelets and having a nurse talk to professors on the phone.

Although my hospital experience went fairly smoothly, I wish the symptoms I had on no one, as it felt like the pain would never end. Stay tuned for part two on this post for how I attended classes remotely for a month.

Dealing with medical emergencies while living in dorm housing

Virtual Classes in High School


At both high schools I attended, teachers often took a pencil-and-paper approach to learning. It was common for teachers to have students complete paper worksheets, take handwritten notes, and read out of textbooks. Any sighting of technology in the classroom was rare, minus the occasional graphing calculator or once a year iPad assignment. Assistive technology was an even rarer sight. Because of this, teachers were not provided the necessary resources to have a student like me, who could not read standard print materials or write clearly, and who frequently used technology. It was easy to see their frustration, and while some teachers did manage to include me in their classes, it was too difficult for others to integrate assistive technology into the classroom. So what is a student to do?

Enter, virtual classes.

Virtual classes in high school are offered through many different platforms, and can be taken full-time or part-time, for short or long term periods. These classes allow students to use their school’s or their personal technology to learn material and complete alternative, digital assignments. There are still class assessments, AP exams, and state standardized tests for classes, and students still receive the same amount of credit on their transcript. Here are ten of the reasons I am glad I took virtual classes. I took a total of sixteen virtual classes across all core subjects using the platforms Moodle, Desire2Learn, Rocket Learning, and Brigham Young University Independent Study, and graduated in 2015.  Permission to take virtual classes was not written in as an accommodation in my IEP.

Using my own technology

Often times, it was difficult to enable accessibility settings on school computers because of the restrictions set in place for students. Since virtual classes can be accessed on any internet-enabled device, I can use my own computer or iPad with settings exactly how I like them, and the school doesn’t have to worry about it.

Ability to get ahead in class

With chronic illness, there are weeks where I feel like I can get everything done and be on top of everything, and other weeks where I am spending a lot of time asleep. My teachers would post assignments early and encourage students to work ahead, which I would do when I was feeling great. As a result, it was uncommon for me to fall behind.

Practicing technology skills

It always surprises me how many students aren’t proficient in using technology. By taking virtual classes, I was able to practice researching topics on the internet with different tools, use Microsoft Office applications easily, and create my own accessible materials. This really helps me in college, as I have had professors that require all assignments be completed and submitted digitally, and have also taken virtual classes in college (more on that here).

Access class anytime

My senior year of high school, over half of my classes were virtual, and scheduled for the beginning and end of the day. Because of my chronic migraines, I was sleeping a lot more, since sleep is the only cure for my migraines, and would often do my assignments outside of traditional school hours. As long as the assignments were submitted on time, my teachers never minded this, and encouraged students to complete assignments whenever was most convenient for them.

My IEP was always followed

While I did have many teachers who followed my IEP in the classroom, there were teachers like I mentioned that had very few resources and couldn’t integrate a student with low vision into their classroom. In my virtual classes, my IEP was always followed, since I learned to self-advocate and make things accessible myself.

All materials can be enlarged

Sometimes, there would be a classroom assignment that was impossible to be made accessible. Since virtual class assignments are created with technology in mind, it is easy to change a font size or background color, zoom in on an image, or use a high contrast display.  Why I prefer digital materials here.

Take any class

There were times I was strongly encouraged not to take certain classes, as the teacher was skeptical about having a student with an IEP. For one of these classes, I took it virtually through a state program and had a teacher who was experienced not only with IEPs, but also with having students with low vision. I know I wouldn’t have had such a great experience if I had taken the class in the classroom, and I was thankful that I was able to take it virtually.

Another example is that I completed my PE and health requirements online, since being included in traditional PE classes would be near impossible- and being included in Driver’s Ed would have definitely been impossible! For more on my experience in taking PE virtually, click here.

Summer classes

I took a virtual class every summer in high school, but this setting was especially helpful when I had to repeat Algebra 2, due to my IEP accommodations not being met the first time I took the class. I found accessible graphing applications and a large print calculator, and was able to get an A when I retook the class. Best of all, I didn’t have to worry about being in the classroom environment again, where it would be more difficult for me to integrate technology.

Quiet testing environment

I remember for one of my classes, the testing environment was always very noisy, and it was difficult to concentrate. While I could take some tests at home, I also took tests at my school, traveling to quiet testing locations so I could concentrate.

Improved grades

Because I was able to access all of the materials and had my accommodations followed, I often received higher grades in my virtual classes than in my traditional classes. My senior year, when I had four virtual classes, I was able to get straight As!

Because I still attended school for electives, I never had to worry about missing out on the social aspect of being in the classroom. My virtual teachers were also just an email away, if I needed them, and there were also virtual education specialists based at my school. The virtual high school setup was perfect for me, and allowed me to eventually take virtual classes in college. I would not have graduated unless I had the opportunities I was given in virtual classes.

Ten Things That Surprised Me About College


Before I left for college, my mom was talking with someone, expressing how worried she was about my transition to college, since getting my accommodations in high school was so frustrating. This person reassured my mom that college was completely different, and I would be fine- and they were definitely right. Here are ten things that surprised me about how different college is than high school.

No one really notices my cane

I started using my blindness cane shortly after freshman orientation. I had delayed getting a blindness cane for many reasons, one of which was the worry about social stigma. Maybe it’s because there are several other cane users at my school, but no one seems to notice that I use my cane when walking around. Of course, they acknowledge it exists, but it’s not common for people to go “check it out, she has a blindness cane!” For my responses on what happens when people do say that, click here.

It’s easy to drop classes

I attended exactly one class period of a mythology class, and then came to the conclusion my accommodations would not be followed. Instead of filling out a bunch of forms and going to the counselor like I did in high school, I just clicked a few buttons in my student account and chose a different class.

Accessible materials are abundant

Digital materials are extremely common in college classrooms, as is assistive technology. It’s easy to make anything accessible, and there are also resources to help students learn how to create accessible materials.

Testing is much easier

I had a few teachers who claimed my large print was unfair to the other students or was an unfair advantage. I have never had a professor say that, but I’ve also had the resources of the testing center reserved for students with disabilities. Click here to read all of my posts on this topic.

People are proactive, not reactive

My Disability Services file was set up in order to ensure I receive accommodations from day 1- I didn’t have to wait until there was a problem to receive my services. Read more about setting up a file here.

Class attendance is flexible

This is not to say that skipping class is a good thing, but if there is severe weather, illness, or other circumstances preventing a student from getting to class, professors are happy to have students attend class remotely or send alternative assignments. This is especially helpful since I get chronic migraines.

Technology isn’t just allowed, it’s encouraged

As I have mentioned in past posts, my high schools favored pencil-and-paper learning, which make accessing materials challenging. Since technology is used in every career, professors encourage students to bring technology to class and use it to complete assignments. Everyone is using laptops and tablets, not just certain students.

There are many other students like me

I have found a sense of community at my college with various students who also have chronic illness, and even a few with Chiari Malformation. I’d never met anyone else my age with low vision until I got to college either.  Often times, we were the only ones in our schools that we knew of with chronic illness, so it’s amazing to meet other people who have had similar experiences.

Professors are open to having students with disabilities

While not all professors are like this, almost all of my professors fully embraced having a student with a disability in the classroom and were willing to work with me on accommodations. Often times, the professors that were most enthusiastic about working with me wore glasses, worked with someone who was blind/low vision, or had a background in working with disabilities.

It’s way better than high school

High school was extremely difficult for me not because of the content, but because my disability was frequently perceived as an inconvenience. In college, I am able to self-advocate and work closely with professors to make sure I succeed. I have loved being in college, and hope that others can have the same positive experience that I have.

Ten “Weird” Things I Brought to College


As a student with low vision and chronic illness, my dorm room looks a little different than a typical room. I live in a single room, meaning I have no roommate, and share a bathroom with one to three people, as opposed to with the entire hall. I have been very fortunate to have this housing arrangement, and cannot recommend it enough for students with chronic migraines. Because of this atypical arrangement, I brought a couple of “weird” things to college with me to help me both inside and outside the classroom. Here are ten of the items:

Bed rail

My first morning at college, I rolled out of bed, literally- I fell from three feet in the air and landed on my face. My parents bought me a toddler bedrail for me to use at night so this experience wouldn’t happen again. I found it also keeps all of my blankets from falling on the floor. A bunch of my friends even went on to buy bedrails for their own dorm bed. My parents found a bedrail for $20 at Walmart.

Desktop computer

I will have a full post on why I chose to bring a desktop computer, but here are the simple reasons- about 50% of my classes are virtual, I rely on digital tools for school, and type all of my assignments due to dysgraphia. My specific computer also has a built in 3D scanner so I can easily enlarge items.

Contact paper

Having low vision means I’m more prone to spilling things and knocking them over- it happens so often, my mom called to tell me she saw a child with glasses knock over a cup and thought of me. I decided to cover my dresser, desk, and closet doors in contact paper to help protect against water that will inevitably be knocked over, or other messes. It cleans up very easily and doesn’t damage the furniture. I got marble contact paper from Amazon for about $7 a roll, and used 7 rolls total.

Blackout curtains

I have severe sensitivity to light when I have migraines, and require a completely dark environment to recover.  Lightning storms, or as I call them, nature’s strobe lights, can also affect my recovery.  My family purchased these blackout curtains from Target that block out all light when they are closed, and I had them fire proofed for free at a college event on campus, as curtains are required to be fire proofed in the dorms.  I got two of these curtains here.

Google Chromecast

There’s a full review of the Chromecast here, though I have used this device often. I stream videos, use it as a second monitor for my computer, screen-cast my phone, and more. It was a little difficult to set up, but my post explains how I did it. Get one here.

Rolling backpack

Starting my senior year of high school, I would use a rolling backpack for all of my school supplies. I am able to carry all of the materials I need for class without throwing out my back or shoulders. While there are some days I have to use a backpack (like when I have to bring my E-Bot Pro or musical instrument to class), it has saved me on many days. My backpack was purchased at Costco, but I found a similar one here.

Video camera

While my college has video cameras for students to borrow, I chose to bring my own video camera to school. I had purchased my camera about a year prior for a mentorship, and enjoyed doing videography in high school. I have used the camera surprisingly often, from doing class projects to practicing lectures to entering contests, along with helping many friends with film projects. In addition, I brought a tripod that fits in a bag stored underneath my bed, and a camera bag. My camera has been discontinued, but it is a JVC shock, drop, and freeze proof camera with a touchscreen.

Tons of stuff for my bed

I have a full list of the items on my bed here, and probably brought way more items for my bed than the average student, mostly because I spend a lot of time in bed recovering from migraines. As a result, I probably have one of the coziest beds on campus.

Urbio

The Urbio Perch is a wall storage system that uses command strips and magnets. I use Urbio boards on both my walls and on furniture- I attach pens and highlights to the side of my desk, toiletries to the side of my dresser, and I have four boards on my wall that contain my hair dryer, chargers, winter items, and important papers. Stay tuned for a post on how they look in my dorm room. Get it from Container Store here.

Echo Dot

This is a new addition to my electronics collection, but it has been an amazing tool. I wrote a full review on it here, but some of the many things I use it for include as a talking clock, timer/alarm, weather forecasts, calculator, news source, and especially for music. Get it here on Amazon.

While these are definitely uncommon items to pack for college, I have gotten a ton of use out of them and am glad I didn’t have to have my parents mail me these items later.

Life with Chronic Migraines


The year is 2011, but I’m in too much pain to remember that at the moment. I’ve forgotten a lot of things- my own name, the name of my cat, what town I lived in, and who the president is. All I can sense is levels of pain that I have never felt in my life before, and I wish they would stop. My parents thought I was having a stroke, the local hospital thought it was a drug overdose. It wouldn’t be until three days later at the children’s hospital that I would get pain relief and the diagnosis of chronic migraines, something no one else in my family had.

Chronic migraines are defined as “more than fifteen headache days per month over a three month period of which more than eight are migrainous, in the absence of medication over use (International Headache Society).” Migraines commonly run in families, and can coexist with other neurological conditions as well. Another name for chronic migraines can be chronic daily headache. Since 2011, I have had more than 15 headache days a month, sometimes reaching up to 30 headache days, where I have a debilitating migraine every day, a symptom connected to my diagnosis of Chiari Malformation.

For me, my migraines are drug resistant, though my neurologists over the years have had me try several different medications with awful side effects. Topamax made me never hungry, Verapamil made me dizzy, Amytryptiline and Imitrex gave me allergic reactions, and Neurotin gave me worse side effects than I ever could have imagined. I was missing school to go sit in the nurse’s office or missing band performances because the flash photography was similar in frequency to a strobe light, my biggest trigger. I had to navigate freshman year of high school while on large amounts of migraine drugs with weird side effects, yet still having chronic pain. I wish that experience on no one.

I started to manage my symptoms with massage therapy and acupuncture, and found that helped a lot with managing my migraines. It didn’t lessen their frequency, but because there was less pain in my neck and shoulders, the pain seemed more tolerable. I also start finding simple remedies that help me manage my symptoms, like peppermint essential oil to combat nausea or doing yoga to release muscle tension. Using alternative medicine has helped me a lot, though I understand that it isn’t meant to cure my migraines.

My senior year of high school, I was in almost all virtual classes for several reasons, one of which was my chronic migraines. I would sleep through my first period class, come to school for second and third period, and often leave during fourth period. Alternatively, I would stay through fourth period and then go home and crash in bed. Sleep was really the only way I could manage my migraines, which could be triggered by flashing lights, loud noises, the weather, or seemingly nothing at all. Food triggers were ruled out as the cause of my migraines, as well as vitamin deficiencies and similar conditions. My migraines were confirmed to be caused by Chiari Malformation in October 2015.

Fortunately, I have been able to attend college several hours from home and continue to manage my migraine condition. I have a private bedroom, meaning I do not have a roommate, but do have 1-3 suitemates who I share a bathroom and living area with. My disability housing accommodations state that I should have a lower-level private room with air conditioning, and the ability to make my room completely dark, as I am sensitive to light and sound when I have migraines. I also have a file with Office of Disability Services that says I have migraines. I schedule my college classes at times where I usually don’t get migraines and often come home from class and sleep (read more about my bed here). I have also gone to class with migraines before, as I know the migraine won’t improve whether I’m sitting in my room or sitting in the classroom.

Often times, people can’t believe that I am able to function through my migraines so well, and ask how I am able to live through this pain. The truth is, I have two options- let everything consume me and just sit in my room all day, or get used to the pain and live my life. While that first option may be beneficial for some people (and I understand pain is relative), I have chosen the second option of developing a superhuman pain tolerance and just living life. I do not like talking much about my condition in real life, because I do not want sympathy or attention from others, especially people I barely know, as I can manage my pain just fine. My close friends and family know the depth of my condition, and that’s more than enough.

I can’t say that life with chronic migraines is the best thing ever, but I can say it has made me a more understanding person. Whenever someone around me experiences migraines, I can relate on a deep level to the pain, sensitivity to the world, and feeling like hair weighs 100 pounds. I understand there are people who have it worse than me, but my hope is that my experiences with chronic migraines can help someone else understand their condition more.

My College Bed

My College Bed

When I was shopping in preparation for freshman move-in, one of the main things I focused on was my bed.  I have Chiari Malformation, which causes severe back and neck pain, as well as chronic migraines that can only be treated with sleep, so I spend more time resting in bed than the average college student.  Because of this, it was extremely important that my bed be as comfortable as possible, and be a place where I could easily recharge, as well as manage my pain.  Here is everything I have for my bed, starting from the foundation.  I live in a single room, meaning I am the only one in my bedroom.

Mattress

While I didn’t have to buy this, I thought it might be helpful to show off my mattress with nothing on it.  While it is possible to request a full size mattress through disability housing, I have the standard college sized mattress, which is a Twin XL.  After sleeping on it at college orientation with nothing (and lots of back spasms), I got an idea of what I would want to look for in padding.

Wamsutta Cool and Fresh Fiberbed

The Wamsutta Cool and Fresh Fiberbed is the only mattress topper I have ever needed for my dorm bed.  It is very soft, but still provides fantastic support.  It also fits nicely in the college washing machines.  I never had to add any other mattress supports, as this provides everything I needed.  It is a soft pillow top cover that fits my mattress exactly.  It can be found at Bed, Bath and Beyond and Amazon.

Room Essentials Pocket Sheets

I bought a fitted sheet for my bed as well as several different pillowcases from the Room Essentials brand at Target.  They are easy to care for and remind me of t-shirt material.  One of my favorite features is that the fitted sheet contains side pockets, which work as a great holding place for my glasses at night.  I bought two fitted sheets and seven pillowcases (more on why I bought so many later in the post).  Sheets can be purchased here, and pillowcases can be purchased here, but are only available in-store in some regions.

Life Comfort Blanket

I bought this blanket from Costco about two years ago and loved how soft it was- in fact, I fell asleep during move-in while using it.  One downside though was that it MUST be washed before first use, or else it sheds everywhere!  I was covered in gray fuzzballs, but the problem went away right after I washed the blanket.  It can be found on Amazon here.

Twin XL Heated blanket

My college allows students to have heated blankets, but not heated mattress pads.  I received a heated blanket as a Christmas present in high school, and it has been one of my favorite gifts ever.  I got a Twin XL sized blanket for college, and I use it often- I like to turn it on a few minutes before I go to bed so that my bed warms up.  I cannot find a link for the one I have, but it was purchased for less than $50 at Bed, Bath, and Beyond.

Room Essentials Microplush Blanket

This blanket is great for layering with other blankets, or simply on its own.  I have a very similar blanket on bed at home, so I knew I would want one in college as well.  It hangs off my bed a bit, but I think that is because of how my bed is pushed against the wall.  Get it at Target. 

Room Essentials or Xhilaration Comforter

I have both Room Essentials and Xhilaration comforters layered on my bed.  They are fairly lightweight, and I can also rearrange my blankets so that I am sleeping on top of one (the comforter pictured is from Xhilaration).  I found very little difference between the Twin and Twin XL sizes between these brands, as the comforter on top was labeled a Twin size and it generously covers my bed.  They come in a variety of designs- here is my Room Essentials comforter, and here is my exact Xhilaration comforter.

Yogibo Caterpillar Roll

This pillow is what keeps me from rolling face first into the wall every morning, a problem that I often faced when I lived in a dorm with concrete walls.  It also provides great support for my back when I sleep on my side.  Get it from the Yogibo website or on Amazon, with Prime shipping.

Room Essentials Extra-Firm Pillow

I needed a pillow that was cheap in comparison to my other pillows that I could use for layering, so picked up one of these at Target.  I don’t use this as my main pillow, so it didn’t really matter how much support it had.  Get it at Target here.

Beauty Rest Extra Firm Pillows

Why do I have five of these pillows?  Well, with all of my different spasms, I have found that these pillows, in combination with firmer ones, provide optimal support and help me rest when I have terrible pain.  They do not put additional strain on my neck, and I can sleep in any position that I want.  Why do I have an odd number of these pillows when they come in packages of two?  I don’t know.  I originally purchased these from Costco, but they appear to no longer be available.  Get them from Amazon with Prime shipping here.

Yogibo Sleepybo

I talk about Yogibo products more here, but this Sleepybo is a very firm pillow that reminds me of my beloved Yogibo at home.  This pillow works amazing when I have pain behind my eyes or for elevating my legs.  It is also one of the main pillows I use at night.  It is currently out of stock on the Yogibo website, but can be found here.

Purelux comfort cool pillow

Another great Costco purchase, this is the firmest pillow I have, and the cooling sensation is absolutely amazing when my migraines make it feel like my hair weighs a hundred pounds.  It also has a curved end, so I can insert in a neck pillow if I need one, which works awesome for when I have neck spasms.  I found it on Amazon here.

Cozybo

Since I use so many blankets,  I like to keep a lightweight one at the top for when I am sensitive to temperature, or suddenly develop a migraine and find that it’s too much energy to be underneath the covers.  As mentioned in my Yogibo review, this is my brother’s favorite blanket and Yogibo product, because it is both warm and lightweight, and the material is very smooth.  Get it on the Yogibo website here.

How I stack pillows

When I stack my pillows to go to sleep, I usually do it in this order:

  • Cooling pillow on the bottom
  • Beautyrest pillow
  • Sleepybo
  • Beautyrest pillow
  • Beautyrest pillow between pillow stack and wall
  • Extra firm pillow on side facing wall
  • Beautyrest pillow on side facing wall
  • Extra Beautyrest pillow for rearranging or against the wall

Toddler Safety Bedrail

So, my first morning in my dorm room, I rolled out of bed…and then fell three feet to the floor because I forgot how high the bed was.  My parents bought me one of these toddler safety bedrails from Wal-Mart and set it up for me, so I wouldn’t do something like that again.  Weirdly enough, I’ve gotten lots of compliments from friends who would visit my apartment and talk about how they were constantly falling out of bed.  It also helps to reinforce my stack of pillows. Get it from Walmart here.

I am lucky to be able to sleep for hours at a time, and have so many things to help me sleep as well.  A lot of these items will be on sale in the coming weeks for back-to-school, so keep an eye out and set price drop alerts!

Null

Yogibo for Chronic Pain


I first learned about Yogibo long before I had chronic pain when we visited a store in Connecticut. My brother and I both loved how cozy everything was, but it wasn’t until years later that we discovered how amazing Yogibo really is.

I started dealing with chronic pain as a result of Chiari Malformation, a structural neurological condition, when I was fourteen years old, though I didn’t receive a diagnosis for four years. With this condition, I have constant pain in the back of my head, neck, and back, as well as the back of my legs and arms. I also get spasms and migraines, which makes the pain worse. I was also in a car accident that damaged my neck and increased my normal base pain level in my neck when I was a freshman in college. While I am very good at functioning through my pain, I rely on a lot of special tools to help me with pain management. A lot of these tools are Yogibo products.

Yogibos are similar to bean bags, but with much smaller beads and smooth fabrics, instead of crunchy feeling covers. They make a variety of products such as giant pillows, bedding, supports, and even aromatherapy. Their main target audience is children with sensory disorders, but the products are amazing for people with chronic pain as well. My brother and I have never encountered a product we didn’t like, and have difficulty picking a favorite. Below, I have outlined ten of my favorite Yogibo products and shown how they help me manage my chronic pain. This post is not sponsored by Yogibo, I genuinely love their products and want to share my favorites.

Yogibo Max
My first Yogibo product was purchased nearly four years ago when we moved to a new house and my brother and I got the Yogibo Max for our rooms. I spend hours lying down on it, as the support is perfect for my back and legs, and does not aggravate my pain. It’s easy to fall asleep on too, which is great when a migraine suddenly hits. When I broke my ankle, I found that lying on the Yogibo was one of the only ways I could relieve the pain. My friends and I use it as seating when they visit as well. This is the only Yogibo product I do not have at college with me due to its size, which is comparable to my Twin XL bed. Get it here.

Caterpillar Roll
I originally purchased this because I kept rolling into the wall while I was sleeping and would hit myself in the face. I have found that when I sleep on my side, the roll provides awesome support for my back, and combines the firm support of the original Yogibo with the soft cozy feeling of my bed. On particularly bad spasm days, I twist the roll so it wraps around my abdomen and provides compression. Get it here.

Yogibo Support
When I found out I couldn’t fit most Yogibo products into my freshman dorm, I was recommended the Support pillow. I most often use it when I am in the end stages of a migraine when I can use my electronics, but sitting upright is too much of a challenge. My friends also frequently sit on the floor with it- one of my friends will walk into my room and immediately grab it, and frequently talks about how much they like it. Get it here.

Zipparoll
After I was in a car accident and started having more neck pain than I ever had before, I was trying every neck pillow in sight, hoping it would help me manage my pain. The ZippaRoll became a fast favorite because of the familiar smooth and supportive material, as well as the fact it could be configured into a variety of shapes, as well as keep ice packs from falling down. I used it both on its own and in conjunction with other pillows. It also works well for lower back support when in the car. Get it here.

Moon Pillow
I purchased this around the same time as the ZippaRoll when looking for neck pillows. I found that it provided phenomenal back support when I was sitting upright, and worked as a neck pillow when I was lying down. I can put it underneath my hip when sleeping on my side, or underneath my chin to make sure I don’t strain my neck while sleeping. I also use it combined with the Yogibo Support. Get it here.

StressLess
This is one of the only tools that helps my shoulder spasms, and has helped me fall asleep many nights. I found that throwing it in the microwave for a minute and setting it on my shoulders provides an amazing soothing feeling unlike anything else. When I start getting spasms while talking to friends on voice chat, they will tell me to go microwave my shoulder pillow. It can also be thrown in the freezer, but I find that my shoulder spasms are more receptive to heat. It is an aromatherapy product, but this does not bother me as I find the scent relaxing. Get it here.

BodyHug
One of the newest additions to my collection, the BodyHug is another aromatherapy pillow. I typically use this for cold therapy on my back, and it also helps with my shoulders when I am lying on my stomach. I’ve also had friends borrow it when they had very bad abdominal cramps- some preferred to warm it in the microwave for about 30 seconds, others preferred the cooling sensation. Get it here.

Yogibo Mate
This may seem like a silly choice, as it is a stuffed animal made out of Yogibo material. I got one of these when I had eye surgery in December and found that it was great to lean against and squeeze, and I could easily rest on top of it if needed. Mine is a sloth, but there are other choices. Get it here.

Cozybo
My mom had bought this for me online and had it waiting for me at home. When it came in the mail though, my brother looked at it, felt it, went “hey this is awesome,” and promptly took it upstairs to take a nap. He says if he had to choose a favorite Yogibo product, it would be this one. I’ve since gotten my own, and it’s my default choice for when I take a blanket in the car, as well as during the warm summer months. I love the smooth material and how it is the perfect weight. Get it here.

Sleepybo
Another pillow that my brother enjoys, this is a normal sized pillow filled with Yogibo material. This was awesome after my eye surgery when I had to spend a while in bed, and it is one of my favorite pillows that I own. I like to stack it with another firmer pillow on the bottom and a softer pillow on top for optimal comfort. It’s currently out of stock online, but you can find it here.

 

Some of the other products currently on my wish list include the Ms. Bliss weighted blanket, WristWiz keyboard support, Yogibo round pillow, and Yogibo cube. My brother has also wanted to try the Lukso fitted sheet, Ms. Bliss weighted blanket, SinusMinus, and Yogibo Double. We both love Yogibo products, and love stopping by the stores whenever we see one- unfortunately, the closest one is currently almost two hours away.

Overall, I can’t imagine managing my chronic pain without Yogibo. As I finish typing this, I have the StressLess in the microwave and am sitting against the Yogibo Support with the Moon Pillow while wrapped in the CozyBo. These products are amazing for my pain management, and I am always quick to recommend them when a friend is dealing with pain. These products really are that incredible.

10 Staff Members To Meet in College


Before I even started at my university, I had already talked to almost three dozen faculty and staff members on the phone and in person to ensure that I would not have any disruptions in receiving my approved classroom and housing accommodations.  Because of this, I was able to learn what staff members would best help me advocate for myself and that would help me while I was in the classroom or in my dorm.  Here are ten staff members that I highly recommend talking to before move-in or the first day of classes.  Please note that some colleges might have more than one person in these positions.

Disability Services Coordinator

Before I even applied to my university, I interviewed the Disability Services office multiple times about how they handled students with low vision (read more about my questions here).  Luckily, the department is very proactive, allowing students to set up accommodations before any problems sink in, and I was assigned a coordinator that specifically worked with students who were blind or had low vision.  The first staff member I worked with was a wonderful resource and helped me write out an accommodation plan that ensured I would receive all of my services  I can’t say enough nice things about them.  Read more about my experiences setting up a file here.

Assistive Technology Specialist

Assistive technology will be your best friend in college, and it always alarms me when students don’t embrace it.  I was an unique case when I arrived at my university- as one of my colleagues puts it, “most college students don’t come in knowing what assistive technology is, let alone wanting to study it.”  The assistive technology department can help with assessments, scanning in textbooks, and providing access to labs.  Some assistive technology departments also organize testing centers for students with disabilities.

Testing Coordinator

The testing coordinator helps make sure that students are able to take tests, quizzes, exams, and more in an environment where they can receive their accommodations.  Students can be referred to this department either by the assistive technology specialist or through Disability Services.  Testing accommodations are typically written in to the Disability Services file, but some testing centers develop their own student files.  It helps to talk to this person before the first day of classes because some majors may require a placement test for math, foreign language, or English classes.  Read more about my experiences with the testing center here.

Special Populations Housing Coordinator

This person is likely part of the committee that handles the special housing requests, and ultimately assigns students with special housing needs to their spaces.  When I had issues with not being approved for special housing as well as my first housing assignment, this person helped ensure that I received the accommodations I requested, and assisted me in finding an accessible room.  This was incredibly helpful with my housing this year, as I am able to stay in the same dorm room that I did last year.  Read more about my housing accommodations here.

Resident Director

This is the staff member that oversees the dorm building and actually lives there as well.  My resident director has been awesome about relaying important information and is a great person to talk to if there is a problem.  They also have helped me with navigating outside and preparing for inclement weather.

Academic Advisor

Each major has an advisor that assists students with picking out class schedules, and can also assist if there is an issue with the professor.  They also tend to be very honest about which professors embrace having students with disabilities in the classroom, and which professors are more hesitant.  Some departments may have advisors also be professors, while others have one or two people that are full-time advisors.

Student Support Specialist

For students who are apprehensive about a situation or potential situation, talking to a member of the Student Support staff can be a great help.  When I was worried about a situation with another student, the staff listened to all of my concerns and helped me develop a plan to ensure that I wouldn’t have to worry about the situation anymore.  This department usually has a confidentiality agreement in place, meaning that they do not have to report what is said in the meetings unless the student requests that they do so.

Security/Police

I made a note with university police that I use a blindness cane and have low vision, so that they would be able to assist me easier if I called.  I also made a note of what room I lived in on campus so if there was a fire alarm and I couldn’t escape, they would know where to find me.  One of my friends who has a severe medical condition gave police an abbreviated medical history, so they could assist emergency medical staff in administering care.

Student Health

While I didn’t work with them until I had my first visit, having a copy of your medical history and health insurance with the Student Health office can be invaluable, especially if you have a chronic illness.  I have a note in my file that I have Chiari Malformation, chronic pain, chronic migraines, and low vision.  Read more about my experiences with Student Health here.

Mail Services Coordinator

This may seem random, but talking to the Mail Services coordinator is very important.  With my low vision, I cannot use combination locks, so I contacted this person to ensure that the mailbox assigned to me would be one that uses a key.  Another one of my friends contacted them to ensure their mailbox would be accessible to someone using mobility aids that couldn’t bend over.  In the event that it’s impossible to go get mail, you can contact the coordinator to authorize someone else to pick up mail as well- I authorized my resident advisor to get my mail after I was in a car accident, and other friends have authorized me to pick up their mail while they were in the hospital.

While not everyone may need to talk to each type of person on the list, I have been grateful for the resources that each of these people have provided me with.  They all have helped, in one way or another, to ensure that I am thriving in the college environment.

Why To Take Virtual Classes in College

Living with chronic illness, it can be very difficult to get out of bed, let alone get to class. While I am able to push myself to get to a majority of my classes, sometimes I just want to be able to do school work without having to move too much. Because of this, I have chosen to incorporate virtual classes into my college schedule, and it has helped me a lot in managing my time and improving my grades. Here are some of the reasons I appreciate virtual classes, and my tips for success. As of spring 2017, I have taken 13 virtual classes in four semesters of college.

Better scheduling

I’ve found that there were a few classes that either were held extremely early in the morning or late at night. Since my vision fluctuates throughout the day, these class times are not a good fit for me. With virtual classes, I can work on assignments while my vision is doing well.

Get ahead easily

Many of my professors post several weeks of class work in advance, so if I am feeling well, I will complete the assignments early,  in case I wind up feeling not-so-well later on. Professors also seem to be more flexible about students turning in late work if an emergency comes up- I was able to easily get extensions on assignments when needed.

Take classes from anywhere

The only reason I got credits my first semester was because of virtual classes. I had two separate medical emergencies happen in the span of November 2015 and spent over six weeks at home (several hours from school) recovering. Basically, I disappeared right after midterms and only came back to school because I had to take a final exam. While I was recovering at home, I was able to continue with my virtual classes and stay on track, and I didn’t even tell my virtual teachers how sick I was until after the class had ended. With the flexibility to take classes anywhere, I was able to do very well that semester.

Use your own assistive technologies

With virtual classes, I can use all of my own technology which is fine-tuned to my preferences. I also can learn which devices, applications, and extensions work best for certain classes and how to create accessible documents. Bonus- I don’t have to balance five devices on a small desk.

Less “fluff” work

One of my friends was often complaining about having to do group projects and other frustrating assignments in one of their classes. I took the same class virtually and only had to worry about reading material, answering three questions a week, and writing a total of two essays. That was it! I didn’t have to worry about investing a ton of energy into a general education class, and I could spend more time on my other classes.

Get used to working independently

One of the common complaints about virtual classes is that there is no one to reinforce deadlines and other materials. This is actually a good thing, as no one is going to be around to remind you of every little thing in the real world. Learning to budget time and research topics online are important skills to have.

You won’t be seen as a disability

While it is important to share your disability services file with your professor, you don’t have to worry about sticking out in class discussions because of your disability, if you are worried about that. In one of my classes (that I dropped immediately), lots of students and even the professor were staring at my blindness cane like it was some type of foreign object and asking a lot of strange questions. In virtual classes, no one can see you.

Take tests in your own environment

Not all virtual classes are like this, but being able to take tests and quizzes in your own testing environment is an awesome advantage to taking these types of classes. I always appreciate being able to take a quiz from the comfort of my own desk, or to take a test with one of my pain relief wraps on.

Adjunct professors

Professors can teach from anywhere in the world, and this is often beneficial as the student is able to learn information from someone in the field, or get a global perspective on a topic. For my global understanding requirement, I had a professor who had travelled to many different countries and was able to educate the class on many different topics related to global health and policy. Another one of my professors was popular at another university from halfway across the country, and we got to take a class with them. I’ve even had professors living in other countries.

Learn more about yourself

This may seem weird, but I have learned a lot about how I access materials and learn through taking virtual classes, probably because I rely on technology a lot. With the ability to take a variety of different classes, I have been able to learn how I process information best, and which technologies are most helpful. I know that virtual classes will help me a lot in the future as well, especially since I want to work with accessibility.

Virtual classes have been an amazing resource for me. I am grateful that my college has really embraced virtual education and that I have been able to take almost any class that I want.