Veronica With Four Eyes

Tag: chiari malformation

Why I Love Having Friends With The Same Condition

Why I Love Having Friends With The Same Condition

My experiences with low vision and chronic illness have made my life much more interesting.  While I may not know how to drive, read a library book without a video magnifier, or walk backwards, I definitely can explain life with Chiari Malformation and low vision, […]

How To Contact Your Senators

How To Contact Your Senators

Like millions of Americans, I have a pre-existing condition. Under the newly proposed Graham-Cassidy Healthcare Bill, that means that insurance companies would legally be able to charge me extra or deny coverage because I have a condition, and I could also have lifetime caps on […]

Navigating High School With a Leg Brace

Navigating High School With a Leg Brace

My sophomore year of high school, I began experiencing painful hamstring spasms related to Chiari Malformation. During these spasms, my left leg would go limp and numb, leaving me unable to walk. Thankfully, I was given a leg brace similar to a knee immobilizer to […]

To My Chiari Malformation On Its Sixth Birthday

To My Chiari Malformation On Its Sixth Birthday

Dear Chiari Malformation, You came into my life six years ago now, when I suddenly developed a constant pain in the back of my head. I was a freshman in high school, and coincidentally it was Chiari Malformation Awareness Month, but I didn’t know that- […]

How Do People With Low Vision…Take School Pictures?

How Do People With Low Vision…Take School Pictures?

Every year, students participate in school picture day at least once, where they have their photos taken for the yearbook, student IDs, graduation, and more. Here are some of my tips for having your picture taken when you have low vision. Do not remove your […]

How I’m Managing My Back Pain This Semester

How I’m Managing My Back Pain This Semester

I have a chronic illness called Chiari Malformation (read more about that here) that causes chronic pain all over my body, focusing on my back, shoulders, neck, and head. Back pain is fairly common for college students, so I decided to put together a list […]

Explaining Chiari Malformation in Seven Words or Less

Explaining Chiari Malformation in Seven Words or Less

Having an uncommon brain condition called Chiari Malformation, I am used to frequently explaining what it is and how it affects me on a day to day basis. Below, I have written twenty-five different summaries of life with Chiari Malformation, all in seven words or […]

Dealing With MRIs

Dealing With MRIs

I’ve had more than my fair share of MRIs since I started experiencing symptoms of Chiari Malformation. While I know there are plenty of people who have had more than I have, I have decided to put together this post and give my advice for […]

How I Explain Chiari Malformation

How I Explain Chiari Malformation

Before I get to today’s post, I have been working on a redesign of my website the last few days that incorporates easier navigation, more pictures, and the color purple, for Chiari Malformation and migraine awareness. ¬†While a lot of things are looking great, I’m […]

Photosensitivity in the Classroom

Photosensitivity in the Classroom

This post is dedicated to Mr. S, who will never see a flashing light or a light switch the same way again. In November 2011, two months into my freshman year of high school, I began getting chronic migraines, with one of the triggers being […]