SAT Accommodations for Low Vision

I remember when I walked in to take my SAT.  The day before, my mom and I, along with the testing coordinator for the school I was taking the exam at, spent at least an hour filling out a variety of pretesting forms and filling out my information on what seemed like several dozen pieces of paper.  Keeping track of all those forms seemed to be more stressful than taking the exam.  When testing day came, the testing coordinator gathered all of the forms and signaled for my mom and I to come to the front of the line so I could be escorted to testing.  As my mom and I walked forward, a bunch of parents started yelling at us for cutting the line and seeming like we were more important than everyone else.  They started asking what was wrong with us as I was walking away with the testing coordinator.  To answer their question, there isn’t anything “wrong” with me, I was just a student who received accommodations for my vision impairment.

We filed for my accommodations at least twelve weeks in advance.  While I had taken an AP Exam in the past, the College Board had us resubmit my accommodations because we had to make some minor changes.  My accommodations were approved in a reasonable amount of time, and I didn’t have to worry about rescheduling.

I took my test in a small classroom where I was the only student, with at least two staff members present.  The overhead lights in the classroom were turned off and replaced with lamps to help with my light sensitivity.  I had a giant table to work on my test, and there were computers in the classroom for when it came time to type my essay.  I received short, frequent breaks to stretch my legs and walk around the classroom, since I was prone to leg spasms.

The test itself was in 22 point Arial font and came in a spiral-bound book on 8.5″ x 11″ paper.  The paper was thick so I didn’t have to worry about the colored Sharpie pens I used bleeding through and obstructing my view of answer choices.  Images were enlarged 250%, and math notation such as exponents were enlarged as well.

As for assistive technologies, I used my personal iPad with the app myScript calculator, a calculator that calculates equations that the student writes with their finger and that supports large print.  There were no graphing capabilities on this calculator.  Guided Access was enabled for the duration of the exam so that I could not access the internet or other apps during the test.  I also had access to Microsoft Word 2013 with the dictionary, encyclopedia, and internet functions disabled, for the essay portion of my exam.  The essay was printed after I finished typing.  If I could go back in time, I would have also used a CCTV device as an extra support during my exam for when I had trouble seeing smaller items.

I received time and a half on the exam, which was adequate for me.  I also did not fill out the bubble sheet for the exam, instead having a paraprofessional do it after I had completed testing and left the building.  It’s worth noting that I did not receive my scores at the same time as everyone else who tested on the same day as me- I believe I had to wait an additional 4-6 weeks, as is common with most standardized tests that are in an accessible format.

Below, I have outlined my official accommodations for the exam:

  • Large print, size 22 Arial point font
  • Graphics enlarged to 250%
  • Extended time- 150%
  • Use of pens on the exam
  • Word processing software
  • Extra/untimed breaks
  • Use of alternative calculator
  • Small group testing environment

Overall, taking my SAT exam went incredibly smoothly, and I was able to score very well and get into my top choice college, as well as my second choice.  I am grateful that it was a relatively stress-free experience in taking my exam…well, about as stress-free as taking a SAT can be.

Having an Undiagnosed Chronic Illness in High School

Back in high school, people often asked me why my vision was so bad, why I had frequent migraines, why I wore a leg brace several days a week, and how I simultaneously looked completely normal.  It wouldn’t be until after graduation that I could answer those questions, after nearly four years of asking the same questions myself.  Going through school with an undiagnosed chronic illness was a unique experience, and today I will be sharing answers to common questions and comments I received from fellow students as well as teachers.

Isn’t there medicine/glasses that can fix this?

WIth the medical model of disability, any type of imperfection is viewed as something that must immediately be cured, so that the person can be considered normal by society again.  Sometimes, there is no cure with today’s medical research, and people are left to try and manage their symptoms in the best way that they can with what they have.  I would have people without a medical background tell me that I should go on certain medications, and when I would respond that I have tried the medication and it was not helpful, people would dismiss me as not really having whatever symptom we were talking about.  Another factor is that it is fairly difficult to cure something when you don’t know exactly what it is.  Typically, the best answer to this question is that there is no treatment available yet, but who knows what can happen in the future.

You’re faking for attention

Ah yes, I must be faking my condition.  I love having lower grades because I had to miss class, and missing my band concert I looked forward to all year because someone chose to use flash photography when I was getting on stage.  I was beyond thrilled to get up in front of my entire freshman English class while spasming and slur my speech so that all of the boys in the class thought I was weird.  I adore having teachers refuse to assign me leadership positions because they’re worried I would be too sick.  And most of all, I love  not being able to do my classwork because I can’t see it, and having the teacher give me a zero!  All sarcasm here, but people say that a condition is fake when it is something they don’t understand.  What I don’t understand is why I would choose to have such poor health in what is supposedly the best years of my life.

I wish I had your condition, haha!

I wish I didn’t have this, but hey, things happen.  There is no reason for you to be jealous that I take naps during the day to get rid of migraines or that I get to sit in the hallway during a movie because of flashing lights.  Comments like this are always interesting to me because it seems like there is no stigma for chronic illness and that it is viewed as something normal.  I just laugh off the comment and drop the subject.

What do you even have?

If you can answer this question, then you would be a totally awesome person.  My condition baffled doctors for many years.  When I first started dealing with symptoms, my primary care doctor told my mom and I “don’t go looking for a zebra in a field of horses,” meaning to not go looking for uncommon or rare conditions.  About a year later, he looked at us and said “time to find that zebra!”  I’m sure towards the end of our search for a diagnosis it felt like we were looking for a unicorn.  Regardless, we always talked about my condition by mentioning the top symptoms, which is usually what I told people who asked me what I had.  Eventually, I would start telling people that my doctors suspected I had the condition I was later diagnosed with.  I felt comfortable doing this because we were running diagnostic testing at the time and I was also the textbook version of that particular condition.

If I were you, I would be in bed

Well, I would love to be, here I am at school regardless.  Since I deal with migraines and chronic pain every day, staying in bed all day isn’t an option, because I would never get anything done.  I have what my friends refer to as a superhuman pain tolerance because of my condition, since I can hold a conversation and participate in activities without collapsing, and I often don’t notice injuries unless they are pointed out to me.  While pain definitely is relative, I have learned to function through it and be able to continue living.

Why can’t you do this anymore?

As my vision has gotten worse, my need for accessible materials has grown exponentially.  I’ve also found it more difficult to participate in activities like dance.  It can be sad to remember the things I was able to do before I got sick, but it’s important to remember there is still so much that can be done.  I got more into writing and playing instruments after I got sick, and took up several other interests as well.  This may be said a lot, but it is true- don’t focus on what can’t be done, but focus on what can be done.

Have you tried essential oils?

I have had several people tell me that my symptoms can be cured by essential oils.  I do believe that they can help with certain symptoms, since I use peppermint for nausea and lavender for restlessness, as well as a few other oils, but none of them are able to completely cure my symptoms.  I tell people that while essential oils are wonderful, they are not a cure and should not be talked about as such.

Aren’t you a little young to be dealing with these medical issues?

Yes, yes I am.  Another favorite response to this question is “apparently not!”  Chronic illness can strike at any age, it does not discriminate.  While I have had low vision almost my entire life, I have only had my condition since I was around fourteen, and people are frequently surprised by that.  Someone once even asked me how I am supposed to be a teenager when I am so sick- since my condition did not stop my aging process, I still got to be a teenager, but not in the same way as a lot of my friends.

Why can’t you do this, but you can do that?

The environment I am in greatly influences whether I am able to perform a certain task or not.  If I am in a room with strobing or flashing lights, I will not be able to function as well as I do in a room without them.  Other factors include my use of assistive technology, my fatigue level, the time of day, the weather, and how much pain I am in.  Just because I can do something one day doesn’t mean I can repeat the same task the next day.

It would suck to be you

Actually, no.  Although my chronic illness has made me miss out on many experiences, I still have been able to do a lot of things and learn about topics that I wouldn’t have otherwise.  I’ve also developed a greater sense of empathy and kindness towards others, because I understand what it is like to be in large amounts of pain and feel like the entire world is spinning.  As I like to remind myself, I wouldn’t be studying assistive technology if I never had this condition.  It’s important to be grateful for the opportunities I have.  My illness will always be something I have, and never who I am.


 

How Do People With Low Vision…Participate in Easter Egg Hunts?

I didn’t realize how bad my vision was when I was younger.  I assumed that everyone saw two of everything, the world was blurry, and small items were difficult to see.  Because of this, I assumed Easter egg hunts were very difficult for everyone and not just me.  I never attended any special events for kids with low vision, and didn’t learn that there were beeping Easter egg hunts for kids with low vision until I was in high school.  Here are some of the ways I participated in Easter egg hunts when I was younger.

See where everyone else runs

I’d sit at the end of the start line with the rest of the kids, and then watch them fan out.  I then would walk out and see where the most kids were, and just sit down and start finding eggs in the grass.  After that, I would just follow the same group of kids from section to section and find a handful of eggs.

Have a partner

I would request to be partnered up with a friend or my brother, and they would help me find eggs.  Since all of my friends and brother had near-perfect vision, the partnership worked very well.  This also helped me avoid not slipping and falling on eggs that I might not have noticed.  No one seemed to care that I was working with someone else.

Use your cane

I have attended more Easter egg hunts in college than I ever imagined.  Since I started using a blindness cane when I began college, I found myself using the cane to help me search for eggs in the grass.  This helped tremendously, and I found myself getting more eggs than before…though it still wasn’t a lot.

Bright colored eggs

It’s a lot easier to find eggs that are bright neon colors than it is to find the more washed out pastel eggs.  One of my friends told me that their family used to put dots at the top of eggs with safety/fluorescent tape to help them find the eggs easier, without it being too easy to find the eggs.

 Attend special Easter eggs hunts for kids with low vision

If available in your area, the beeping Easter eggs are an activity that allow everyone to be at a level playing field.   In addition, it’s a great way to meet other kids who have low vision and practice with locating objects.  Contact your local department for the blind/visually impaired or other low vision/blindness organization for more information.

 

Worst case, if you only find a couple of eggs, there is almost always candy at the end of the activity that no one has to go search for in the grass.  Enjoy your candy, and enjoy Easter!

How Do People With Low Vision…Go To Restaurants?

I went out to dinner with one of my friends several weeks ago.  When we got to the restaurant, they requested that we get a large print menu, so that way I would be able to read it.  The server looked at us like we were absolutely insane, and told us just to hold the menu closer to our faces.  My friend was very surprised that there were no large print menus, or even Braille menus available, and figured it would be illegal to not have these menus available.  Truth is, restaurants aren’t legally required to provide accessible menus, and I’m yet to encounter a large print menu anywhere.  Here are some of my tips on how I navigate restaurants.

Read the menu online

Websites tend to be very good about accessibility and have PDF files or simple webpages for the menu.  If I know where I am going ahead of time, I will browse the menu online and pick a few dishes I might want.  For websites with poor contrast, I copy and paste the menu into a notepad or word processing program and increase the font.

Bring assistive technology

I often bring my SmartLux or use a magnification app on my phone to read menus on the go. The only pitfall is that lighting conditions can be less than ideal, or the fonts may be difficult to read, so this is not always reliable.

Have someone read you the menu

This is most discreet at places where the menu is printed on boards high off the ground.  Have a staff member or friend read items off the menu.  Alternatively, you can take a picture of the boards and then zoom in on the text.

Order the same thing as your friend

I tend to order the same thing as my friend if I find reading the menu too tedious or too frustrating.  No one has ever found this weird, and we also haven’t worried about confusing plates or things like that.  Luckily, a lot of my friends are used to me doing this.  Sometimes they will even just scan the menu for me and order me something they think I will like.

Always get the same thing

While he doesn’t have low vision, my brother will often order the same thing every time he goes to a restaurant.  Be it a burger, macaroni and cheese, or pizza, he says he never has to worry about reading a menu or being disappointed by trying a new thing.  If you develop a rotation of a few dishes at a particular restaurant, you can order easily and not have to worry about menu drama.

Think about silverware

One of my friends has said that one of the most amusing things to watch is me attempting to cut food and cutting either very large pieces or weirdly small ones.  When possible, I try to order foods that aren’t difficult to eat or that can’t easily spill.  At a restaurant that my friend and I go to often, the server will make a note to cut food ahead of time so that way I am not so frustrated.

Advocate for accessible menus

With the aging population increasing and low vision becoming more common, the demand will only continue to grow for accessible menus.  Encourage your favorite restaurants to print out a large print copy of the menu, or even order a Braille copy.  All patrons should be able to order with dignity and order what they want.

All About AIM-VA

When I was in high school, I was unable to read the textbooks that my teachers used in class. Since my middle school didn’t use textbooks, I was surprised to find out that I had to work with them so much. Because the books were older, I was unable to find copies of them to purchase digitally. Thankfully, I was able to use AIM-VA to receive accessible digital copies of my textbooks.

Accessible Instructional Materials Virginia, also known as AIM-VA, is an organization affiliated with the Department of Education that provides accessible materials, not just textbooks, to students with IEPs and print disabilities across the state of Virginia. Each state has their own version of this program. Through their service, I was able to receive math, science, Spanish, and English textbooks. The math and science textbooks were the most important because each letter, number, and symbol is important, as opposed to English where the brain can miss a letter while reading and still understand what word is on the page. I benefitted tremendously from these textbooks, and have written some tips on how to help other students benefit from receiving services from AIM-VA as well.

Order early

Textbooks can be ordered for the next school year starting in late March. Once your schedule is finalized, I recommend placing the order. Some textbooks can be downloaded instantly, others may require processing time. Do not wait until a month into the school year to order textbooks- after all, shouldn’t all students get their textbooks at the same time, not just the sighted ones?

Order ALL the books

Math and science are just as important as English and history. If someone can’t see small letters, they can’t see small numbers either. Also remember that some classes may use multiple textbooks, and it helps to have all materials available. These materials come at no cost to the school, so why not order everything the student will need?

Think beyond textbooks

Do you use workbooks? How about music books? AIM-VA can make all of these materials accessible, even materials used in the classroom such as worksheets and pamphlets that the school might not know how to make accessible- for example, I once had a map enlarged so large, I had to stretch the paper out in the hallway so I could work on the assignment.

Choose a software

Good old Adobe reader works great for reading textbooks, but not all students may be able to take a laptop to school. Back up files to storage solutions such as Google Drive (and ensure they are deleted after the student is done using them for the year). That way, the materials are available on any device, and can also be input into programs like Notability, which allows students to easily read and annotate documents.

My experience

The textbooks and workbooks I receive from AIM-VA were very high quality, and I was able to easily follow along in class using my laptop. Since my first high school did not have wifi available for students, I especially appreciated that the files were available to be downloaded offline so I didn’t have to worry about losing access to the files. AIM-VA is a great resource, and ensures that students with print disabilities have the right to read in an accessible format alongside their peers.

Learning to Self-Advocate

On my IEP throughout high school, one of the top goals was for me to learn to self-advocate.  When I was younger, I viewed this goal as meaning that if I had a problem, it would mean that no one would be available to help me and I would be stuck with dealing with everything by myself.  That was not the case, as I had so many people to help support me.  I’ve learned a lot about self-advocacy, and I hope that I will be able to help others learn as well.

What is self-advocacy?

Self-advocacy is learning how to speak up for yourself, as well as learning, building a support network, problem solving, and knowing when to reach out for help. It’s an extremely important skill to have, as there may not always be someone with you when a situation comes up. This skill has greatly benefitted me outside of school, in college, and beyond.

Learning to speak up for yourself

I do not like causing conflict or hurting people’s feelings, so it was hard for me at first to point out that a situation was unfair or that my accommodations were not being followed. In one of my classes, the daily warm-up assignment was never enlarged, so instead of arguing with the teacher every day, I would walk into class and read a book on my eReader until the rest of the class finished with the assignment.

No one can hear you unless you speak up, so make sure to let the teacher know if assignments are presented in a format that is not accessible for you. Also make suggestions on how to make it accessible- enlarging exponents, using different colored pens and papers, digital formats, or anything else you can think of.

Learning

In college, I met another student with low vision that didn’t know anything about the services they received in school. They told me that their parents and teachers handled everything, and they couldn’t tell me what accommodations they received, just that they needed them.

Familiarize yourself with what accommodations you receive. What font size can you read? What color paper works best? What assistive technology do you use? What apps do you use, and on what platform? Do you receive extra time? Are tests in a one-on-one environment? Learning how to explain your accommodations simply and clearly is important.  This information will be very helpful when it comes time to create a Disability Services file in college.

Building a support network

With my IEP, I had three case managers in high school over the course of four years (I attended two high schools). They were specifically picked for me because they were great with helping students learn to self-advocate- they wouldn’t sit there and yell at my teachers over trivial things or constantly hover over me. Instead, they would step in when there was a problem I needed help with. My guidance counselors were also incredible resources, as they would listen and move me out of classes when necessary, as well as be some of my greatest advocates in IEP meetings. In addition, each of my high schools also had an assistant principal who would handle the cases for students with IEPs, and the principal was helpful as well. The central office of my school districts listened to my concerns when situations were too much to handle.

I also had family and friends to help me through smaller situations. My parents, especially my mom, would attend every IEP meeting and help make sure that I was thriving in the educational environment. My parents have always been very encouraging of my goals as well. In the classroom, I also had friends that would help me advocate for myself so I didn’t feel as nervous. In a class where the teacher regularly did not enlarge my work, one of my best friends was always right behind me whenever I went to ask the teacher for my assignments, so when the teacher started telling me that I didn’t need large print, I would feel more confident in reminding them that I do and I would be less likely to back away.

Problem solving

Learning to solve minor problems on your own can be extremely beneficial. I learned how to scan in and enlarge assignments, make documents accessible, and type my own notes when there were no prewritten notes available. This meant that I was still able to participate in class even if my IEP wasn’t completely followed, and it meant my grades were higher because I missed less assignments.

Some posts that may be helpful include my posts on testing accommodations, accommodations for print materials, and what I’ve learned about print disabilities.

Knowing when to reach out for help

In one of my math classes, I had a teacher who did not believe I needed large print, as they assumed my glasses corrected my vision to 100% and it was a waste of their time to enlarge things, despite the fact I had an IEP. I thought I could handle the situation myself, and didn’t tell anyone how badly I was struggling in the class. I didn’t use any assistive technology regularly at that time, so it should be no surprise that I failed the class.

As important as it is to try and handle situations yourself, you have a support network for a reason. It’s important to let someone else step in for situations that involve the law being broken, threats, or when you’ve tried everything you can think of. This isn’t failure to self-advocate though, as an important aspect is remembering when to get help.

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Self-advocacy is one of the skills that I am the most grateful for. Because of this, I have been able to go on to attend college, confident in myself and my abilities, but still knowing where I need extra help. I will always be grateful for the people and experiences that helped me develop this skill.

How Do People With Low Vision…Take Gym?

It should be no surprise, but I am not very good at sports, and if you throw a ball at me, there’s a very high chance I won’t catch it, or alternatively I will catch it with my face. Because of this, I needed accommodations in my gym classes, or took adaptive PE. Here is how I got through gym and health in the public schools I attended.

Elementary school

My first gym teacher was awesome about creating activities every student could participate in, and I never had to worry about being left out or being criticized for not being able to see. Our school received a new teacher my fifth grade year, and they used a curriculum that had a heavy emphasis on team sports. Instead of ask for accommodations, I just would strike out first so I could sit out for the rest of class. On the last day of fifth grade, I was hit directly in the eye with a volleyball, and the incident caused my family and I to rethink how I would take gym when I got to middle school.

Sixth grade

I had eye surgery that October, and needed to be exempt from gym before and for months after my eye surgery. Because of this, it wasn’t practical for me to take gym. Originally, the principal suggested that I take the health course with my class, and when they were in the gym, I could come to the main office of the school and file papers. My parents thought this was a terrible idea, especially because I have a print disability and can’t see to file. After I completed a county-mandated unit in the health class about gangs, I switched into elective classes. Instead of having two elective classes one day and gym the next day, I had two different elective classes each day- in my case, they were band, art, drama, and Latin.  No kids ever noticed that I didn’t take gym.

Seventh grade

Over the summer, my school installed what they called a fitness lab, which had exercise equipment. Students would spend three class periods there, three class periods in the gym, and three class periods in health. While I would often sit out in gym, I was able to participate in the other sections very easily. Something that helped tremendously was that our class was extremely small, with only about fifteen students (normal classes had thirty), and I had friends in the class.

Eighth grade

My teacher had to take a leave during the school year, so we had lots of different substitutes, most who weren’t familiar with vision loss. I also got prisms in my glasses, and moving quickly would give me vertigo. I had to sit out constantly, and because of this, I stopped changing clothes for PE, with my logic being that if I wasn’t going to do anything, why should I change clothes? Because of this logic, I received a D in PE, something my parents weren’t very happy about, but we didn’t fight the grade because it wouldn’t carry over to high school.

Ninth grade

An adjacent school district had a virtual physical education class that they offered in the summer months. Students would learn about the history of sports, health, and keep a fitness log. We had to fight for permission for me to take this class, but it was ultimately granted, and now other students are able to take it. This was also my first of what would be many virtual classes!

Tenth grade

I couldn’t take virtual PE again, or PE in the classroom, because it tied in with Driver’s Ed, a class that I definitely couldn’t be accommodated for. While doing research, my mom discovered there was an adaptive PE program in our school district. I previously was not referred because I briefly didn’t have an IEP in middle school, and my teacher didn’t believe that I qualified for adaptive PE without an IEP. I got a referral and then met with the adaptive PE instructor once or twice a week for a semester and would do exercises. I took the health component of the class through the Independent Study program at Brigham Young University (HLTH 042), a self paced online class. I only needed two PE/health credits in high school, and my college does not require a physical education class- though another friend with low vision who did need a physical education credit took rowing.

Someone asked me if I felt left out because I didn’t take PE like everyone else, and my answer is definitely not. I am still nervous about being around people playing sports today, and I have a feeling I would have many more stories about broken glasses had I taken PE. 

Save Bookshare

Author’s note- Bookshare, a service that provides large print and Braille digital books for people with print disabilities worldwide, is currently in danger of losing federal funding. As a student with low vision, I have been using Bookshare since 2011 and it has dramatically changed the way I read. Below, I have written a sample letter for my local congressmen and senators so they can see how important this service really is. Feel free to use my letter as a template to send to your local representatives.  Read more about Bookshare here.



Dear (representative),

My name is Veronica, and I am a college student here in Virginia studying software engineering and assistive technology, to develop tools for people with disabilities. I graduated from Virginia public schools in 2015 with an advanced diploma and a 3.8 GPA. In addition, I run my own blog about assistive technology and disability life at www.veroniiiica.com. This wouldn’t have been possible if I didn’t have Bookshare, an accessible media library that’s in danger of losing federal funding in the FY2017.

I have low vision, which means that I can’t access standard print materials and require large print. Large print books can be very expensive and hard to find, and sometimes the font size isn’t big enough. Bookshare digitally scans in books so that users can access them in whatever format suits them best- large print, Braille, or audio. Almost any book that can be found in the local library can be found on Bookshare, and I can read the same books that my peers are reading. I’m not just limited to the small large print selection at my library or the even smaller selection at the local bookstore.

I have been using Bookshare since 2011, and it has helped me tremendously both inside and outside of the classroom. Before I had Bookshare, I would have to order large print books that would take weeks to come in, and then I would have to catch up with the rest of the class on the reading. My classmates would talk about books they had read for hours on end, and I would often be excluded from the conversation because large print wasn’t available for the book they were talking about, or the book would be too heavy for me to carry around, like in the case of the Harry Potter series. Once I got Bookshare, I could carry my books around on an eReader or tablet, and download a book almost instantly to read in class. I started reading more and more, and was able to join more discussions in class. Education is invaluable, and with accessible materials, more students are able to learn and go on to pursue higher level education, enter the workforce, and contribute to society. By making these materials accessible, students can thrive in the educational environment, as opposed to failing because they can’t see the materials and believing that they just can’t learn.

People with disabilities are one of the fastest growing minorities here in the United States, with about 1 in 6 people having some type of disability. Disability affects all economic classes, races, nationalities, and other demographics. By funding Bookshare, it ensures that more than 400,000 people with print disabilities are able to access materials. Without it, the responsibility would fall on state and local governments to provide for their students, and the selection wouldn’t be as large, easy to access, or as inexpensive as Bookshare is- Bookshare is able to create materials at a cost that’s fifteen times less than the previous national program.

I hope that you will advocate to restore the Technology and Media FY2017 budget line to $30 million, the same as it was in 2016. Bookshare is extremely important to me, and so many other students, and we don’t want to imagine life without it.

Sincerely,

Veronica Lewis

How to Deal With Being Sick in College

I seem to get sick once a semester, and because of my existing chronic illness, I am more miserable than a majority of my friends, who just have whatever sickness is going around. One of the main reasons I am so miserable is because with Chiari Malformation, my head pain gets worse every time I sneeze or cough, and my vision also becomes extremely difficult to control. Thankfully I’ve already been sick once this semester, so I shouldn’t have to worry about getting sick again. Here are some of my tips for dealing with being sick in college.

Have a pre existing file with Student Health/Campus Clinic

My file contains information like my drug allergies/intolerances and a summary of my low vision and Chiari Malformation, as well as other chronic conditions. I also have a list of medication I am on and an abbreviated medical history. This helps the doctors because they don’t have to ask for a lot of information from me.

Skype into class

Since no one else wants to get sick either, ask to Skype or phone call into class for the day. If this is not an option, ask the professor for guidance on class attendance.

 

Have food delivered or ready to be picked up

 

The dining hall at my school has special prepackaged meals that can be picked up by a friend or RA for a student who is sick. If that isn’t possible, try to visit the dining hall during the off hours, and avoid touching things as much as possible.

 

Have over the counter medication delivered

 

I stocked up on over the counter meds when I got sick by ordering them using Amazon PrimeNow. At the time, everything was sold out on campus because so many students were sick, so this system worked. If you must travel somewhere off campus, try not to take the bus, and instead ask for a friend to drive you. Bonus points if this friend has already been sick and/or is the one that made you sick.

 

Spend time recovering

 

Don’t just mask the illness, make sure to treat it and spend time resting. The last time I was sick, I found myself sleeping for several hours, something that helped my migraines and eyesight tremendously. By spending time away from others, you will be able to relax and focus on getting better.

To anyone reading this out of necessity, I hope you feel better soon!

How To Prepare for Extreme Weather on Campus

On President’s Day weekend in 2016, a large amount of snow came to visit my college campus right outside of Washington, DC. I wasn’t prepared in the slightest for the incoming snow- sure, I had a small amount of food in my dorm room, but since I ate at the dining hall all the time, it was mostly snack foods. I wound up trapped inside of my dorm room for two days, eating peanut butter and jelly crackers and daydreaming about what I could be eating, if only I could walk out of my dorm building. Believe me, once the snow melted, I was beyond thrilled to be eating normal food again. Here are some other tips I’ve learned to help students who are on campus during extreme weather.

Get food in advance

Now that I use Amazon Fresh, I have a small stockpile of frozen dinners and other healthy foods in my fridge at all times, in addition to non perishable foods I can have in case the power goes out. However, I still enjoy utilizing my meal plan to stock up on food prior to a weather event. I bring containers in my backpack to the dining hall and fill them with things such as salads (dressing in a separate container), wraps, peanut butter and jelly, grain salads, soups, pasta (sauce in separate container), fruit, pizza, and whatever else I can. I just put everything in my fridge when I get back to my room and reheat it as needed. My school does have a rule against taking food outside of the dining hall, but they tend to be more relaxed about this rule before and during extreme weather.

Call your professors before leaving for class

During Superstorm Jonas last year, I attempted to walk to my class halfway across campus. I wound up making it about halfway before falling down on the ice and having to call a police escort to take me back to my dorm. My professor later asked me why I attempted to walk to class, and said I could have just called him and said I couldn’t make it, and I would have been exempt. So, before leaving for class in extreme weather, call your professors and see if conditions are stable enough to walk to class. Another benefit is that the call can serve as a timer to see how long it takes to get to class.

Contact Environmental Health Office for guidance

While they can’t tell you to skip class, the Environmental Health Office can tell you which areas of campus may still be covered in ice or that may be difficult to navigate. They also can provide alternative routes to buildings, if needed.

If you must go outside, use a human guide

To avoid injury, walk with someone if you must go outside. This reduces the risk of injury. If no friends are able to walk with you, ask for an escort from campus security. As someone once told me, it is much easier to help a person than it is to have to find a person when they are reported missing.

Protect important items in sealed plastic bins

While this wasn’t related to weather, my friend had to deal with a pipe bursting in their dorm room and water getting everywhere. Luckily, they thought to put all important items in plastic bins so they wouldn’t be ruined if the dorm room turned into a swimming pool. For larger technology such as a desktop computer, I balance an umbrella over it in case of damage.

Have someone verify that all windows are closed

It helps to have an extra pair of eyes make sure that everything is secure. I often can’t tell when something is closed all the way, so having someone confirm that for me is reassuring. The last thing I want is a winter wonderland in my room!

Block windows, if necessary

Lighting is nature’s strobe lights for me, and strobe lights trigger migraines, so in the event of a severe storm, I prop things against the window to make sure I can’t see any lightning. I normally use an inflated air mattress or cardboard.

If the power goes out

Because of my vision impairment, I am used to navigating areas that I can’t see very well. In order to make things easier, have a flashlight or other handheld source of light that is not on a phone (the flashlight drains battery). Contact the resident advisor and/or resident director to notify them that you are in the building and may need assistance in case of evacuation. My school often utilizes their emergency alert system if the power goes out in more than two buildings, so watch for text messages, phone calls, or emails for further instructions.

Go to an off campus location

If extreme weather is likely to last more than a few days, I have my mom come pick me up and drive me home. My home is about three hours from my college, and I am very grateful that my mom is able to help me. For students who may not be so close to home, find a friend who lives locally and go stay with them. A couple of my friends have even stayed in a hotel near campus when there was no heat in their dorm room.

While extreme weather can be very stressful to students living on campus, hopefully these tips will help you be prepared for the next hurricane or blizzard to come your way!