Disability and Chronic Illness

Choosing New Devices With Chiari Malformation

Choosing New Devices With Chiari Malformation

While I have spent a lot of time talking about low vision and how my neurological condition influences how I use technology, I haven’t shared too many specifics about choosing new devices with Chiari Malformation and accessibility settings for Chiari Malformation that go beyond vision…

Dorm Room Disability Hacks For Chronically Ill Students

Dorm Room Disability Hacks For Chronically Ill Students

Even though I didn’t live in a mobility access/wheelchair accessible dorm on campus during undergrad, I still used several dorm room disability hacks to make it easier and more comfortable to move around my dorm. As a student diagnosed with Chiari Malformation and then-undiagnosed POTS,…

Low Vision Assistive Technology For The Bathroom

Low Vision Assistive Technology For The Bathroom

Ever wonder “how does a blind person use the bathroom?” or “how does someone who is visually impaired take a shower?” I’ve had many people ask me these questions, including children, teachers, friends, and even people I shared a bathroom with in student housing. Like…

Ten “Odd” Things I Do With Double Vision

Ten “Odd” Things I Do With Double Vision

For as long as I can remember, I have had double vision that causes me to see two of everything. The way I see double has changed/fluctuated as I have gotten older— sometimes I would see two items side by side, sometimes they would appear…

Dear Middle School Teacher: Starting Middle School With Low Vision

Dear Middle School Teacher: Starting Middle School With Low Vision

Dear middle school teacher, here are ten things your new low vision student wants you to know, but may not realize

Middle School Classrooms And Low Vision Accessibility

Middle School Classrooms And Low Vision Accessibility

When I was working with a student preparing to transition to middle school, I worked with the student’s support team to come up with a list of ideas and strategies for setting up their future middle school classrooms with low vision accessibility in mind. Since…

Tips For Going To Prom With Chronic Illness

Tips For Going To Prom With Chronic Illness

Attending prom with low vision, photosensitivity, and migraines

How I Talk To Professors About Photosensitivity

How I Talk To Professors About Photosensitivity

I receive disability accommodations in college for two different medical conditions- an eye condition that causes low vision and a neurological condition called Chiari Malformation. Both my eye and brain condition cause me to experience light sensitivity, sometimes referred to as photosensitivity, and my accommodations…

How To Explain Disability Accommodations To Professors

How To Explain Disability Accommodations To Professors

How to tell college professors about your disability services file

Seven Places I Don’t Take My Blindness Cane

Seven Places I Don’t Take My Blindness Cane

When I was moving out of my dorm at the end of the school year and rearranging items inside a box, a staff member asked why I don’t take my blindness cane with me everywhere I go. They were wondering how I was able to…

Filling Out Medical Forms With Low Vision

Filling Out Medical Forms With Low Vision

When arriving at a doctor’s appointment or meeting with a specialist, patients are often expected to fill out several medical forms by hand in the waiting room, and are expected to finish by the time they are escorted to an exam room. Since patients can…

Tips And Advice For New Accessibility Advocates

Tips And Advice For New Accessibility Advocates

While sitting in my dorm room at George Mason University in 2016, I came across an event listing from the Center for Accessibility at DC Public Library where people could come in and have conversations about assistive technology. I had been considering starting a blog/website…