Chiari Malformation

How to use common household objects and craft supplies to create tactile (3D) images, great for math and science classes.

Phrases that describe what it’s like living with Chiari Malformation

My life with double vision and seeing the world with four eyes open

When I was in middle school, I noticed that it was easier to read text early in the morning compared to later in the day when my eyesight would be worse, not realizing this was due to fluctuating eyesight. As I got older and my…

Strategies and tips for choosing jewelry with chronic pain and things I look for when buying necklaces, earrings, and scarves with Chiari Malformation

As much as I would like to say that I’ve had perfect attendance in college and would rarely miss assignments, there have been several situations where I had to miss class or submit an assignment late due to circumstances outside of my control or outside…

As part of physical therapy, I was given a list of exercises to do at home a few times a week that will help me with my treatment goals. I noticed that it was challenging for me to remember how many exercises I was supposed…

I’m a huge fan of the Bookshare accessible online library for people with print disabilities, and have been using the service since I was a freshman in high school. I interact with Bookshare in some capacity every day, whether it’s checking out new books, reading…

As an undergraduate student living with an unpredictable medical condition, I often relied on college scheduling hacks for students with chronic illness to put together a hybrid schedule each semester that would provide options for flexible attendance and easy access to course materials online. This…

Recently, I received a question from the parent of a middle school-aged musician with low vision asking about options for watching the conductor with low vision. The student said that they have trouble seeing the conductor from where their section is located, and it often…

When I was in high school, I sometimes had difficulty explaining how common technology behaviors or other technology in the classroom would hurt my brain, also known as give me a migraine. Many teachers assumed that I was refusing to participate in class, but the…

As a student living with chronic pain, I often joke with my friends that I have to over-think several decisions, which includes choosing a backpack for bringing materials to class. Choosing a backpack with chronic pain isn’t as straightforward as just making an aesthetic choice…