How Do People With Low Vision…Deal With Injuries?


It all happened in the blink of an eye.  I was getting off the bus for a band performance, and didn’t notice there was a pothole right in front of the bus door.  The chaperone told me that I shouldn’t need help getting off the bus, even though I always receive assistance from a friend.  I walked down the first step, and then the second step.  Then, I missed the last step, tripped, and fell into a gravel pothole.  I heard a weird crunch sound, but figured it wouldn’t be anything.  I turned to one of my close friends after they got off the bus, and said “my foot just made a crunch sound, isn’t that weird?”  This friend had watched me fall, and then said “yeah, I’m pretty sure you’re hurt, I’m going to go get someone.”  I was confused, because I didn’t feel any more pain than usual, but when another close friend (with EMT training) inspected my foot, they noticed how swollen it was.  X-rays and MRIs later confirmed that I had broken my left ankle in four different places, and strained it in two.  Go big or go home.

Dealing with low vision and chronic illness is challenging on its own, and adding another injury into the mix was extremely frustrating.  Here are my tips for dealing with short-term injuries while also balancing other conditions.  Please note that Ehlers-Danlos Syndrome has been ruled out as a cause for my chronic illness and injury.

Document what happened to cause the injury

Right after it happened, one of my friends took a picture of the pothole I fell in, and explained that I had tripped over a stair as well, essentially falling off of a school bus.  Other friends immediately alerted the band director and other staff members as to what had happened.  This is especially helpful if paperwork needs to be filled out documenting what happened.

Tell the doctor you have low vision

When I fell off the bus, my parents had to come get me and then take me to the local urgent care.  We made sure to remind each doctor, nurse, and technician that I have low vision, which helped them with trying to figure out how I had injured my ankle in such a weird way.  We also mentioned I had suspected Chiari Malformation (this diagnosis was confirmed almost exactly a year after I initially broke my ankle) and that I had balance issues as a result.

Knee scooters are better than crutches

Crutches can be a bad match for someone with existing balance issues and low vision, as it can be difficult to see paths ahead.  My parents rented a knee scooter for about two weeks from a pharmacy so that I wouldn’t break my other ankle trying to use crutches.  I had another close friend who would walk slightly ahead of the scooter and help guide me, as well as open doors for me.  This friend would also try and make sure I didn’t crash into a wall.

Make sure the brace is on correctly

The first nurse we worked with after I broke my ankle put my brace on incorrectly, and I had trouble learning how to put on the brace as well.  Have someone confirm that the brace is a good fit, and then have them teach you, kinesthetically, how to put the brace on and take it off.  When I had issues with my wrist earlier this year, the nurse at Student Health had me demonstrate to them how to take the brace on and off so they could make sure I wouldn’t cause myself further injury.  I had another friend confirm that my brace was for the correct hand.

Be prepared for elevated pain

Even though I have a very high pain tolerance, I found that even minor things could cause unbearable pain for me while I was recovering.  My migraines seemed much more intense because I had the additional pain of my ankle.  I spent almost all of my free time on my Yogibo Max, elevating my ankle, and trying to manage the pain.

Find a physical therapist who works with your conditions

My physical therapist from when I broke my ankle was not very familiar with low vision, and even less familiar with Chiari Malformation, which is why some of the exercises were more difficult than they should have been and caused pain.  I switched to a different physical therapist later on who was very familiar with Chiari Malformation, and was able to work with my low vision as well.

Find supportive pillows

Elevating the injured body part is very important.  When I hurt my wrist, I had this miniature Pillow Pet that I was always resting my wrist on, even while I was sleeping.  For my ankle, I often rested my foot on top of my backpack at school, or on a set of pillows while I was at home.

Ice packs

I recommend having several different ice packs ready to go at any given time.  My favorite ones are the flexible gel bead ice packs, because they do not feel super hard and I can easily conform them to whatever is hurting.  Here’s the one I have that can wrap around anything.

Add this to your medical history

Make sure to add the injury to your medical history for when you travel to doctors.  Believe it or not, my broken ankle was a factor in my diagnosis for Chiari Malformation, because my balance and leg spasms at the time were consistent with the condition.

Laugh about it

Not long after my injury, I was laughing a lot about the circumstances that had happened, as I really thought it was funny that I had fallen off a school bus and potentially broke my ankle.  Same with when I badly bruised my wrist after falling down a flight of stairs on my way to band practice.  While they are very lame injury stories, this is another day for me with low vision, Chiari Malformation, and occasional bad luck.  It’s just another part of life!

Yogibo for Chronic Pain


I first learned about Yogibo long before I had chronic pain when we visited a store in Connecticut. My brother and I both loved how cozy everything was, but it wasn’t until years later that we discovered how amazing Yogibo really is.

I started dealing with chronic pain as a result of Chiari Malformation, a structural neurological condition, when I was fourteen years old, though I didn’t receive a diagnosis for four years. With this condition, I have constant pain in the back of my head, neck, and back, as well as the back of my legs and arms. I also get spasms and migraines, which makes the pain worse. I was also in a car accident that damaged my neck and increased my normal base pain level in my neck when I was a freshman in college. While I am very good at functioning through my pain, I rely on a lot of special tools to help me with pain management. A lot of these tools are Yogibo products.

Yogibos are similar to bean bags, but with much smaller beads and smooth fabrics, instead of crunchy feeling covers. They make a variety of products such as giant pillows, bedding, supports, and even aromatherapy. Their main target audience is children with sensory disorders, but the products are amazing for people with chronic pain as well. My brother and I have never encountered a product we didn’t like, and have difficulty picking a favorite. Below, I have outlined ten of my favorite Yogibo products and shown how they help me manage my chronic pain. This post is not sponsored by Yogibo, I genuinely love their products and want to share my favorites.

Yogibo Max
My first Yogibo product was purchased nearly four years ago when we moved to a new house and my brother and I got the Yogibo Max for our rooms. I spend hours lying down on it, as the support is perfect for my back and legs, and does not aggravate my pain. It’s easy to fall asleep on too, which is great when a migraine suddenly hits. When I broke my ankle, I found that lying on the Yogibo was one of the only ways I could relieve the pain. My friends and I use it as seating when they visit as well. This is the only Yogibo product I do not have at college with me due to its size, which is comparable to my Twin XL bed. Get it here.

Caterpillar Roll
I originally purchased this because I kept rolling into the wall while I was sleeping and would hit myself in the face. I have found that when I sleep on my side, the roll provides awesome support for my back, and combines the firm support of the original Yogibo with the soft cozy feeling of my bed. On particularly bad spasm days, I twist the roll so it wraps around my abdomen and provides compression. Get it here.

Yogibo Support
When I found out I couldn’t fit most Yogibo products into my freshman dorm, I was recommended the Support pillow. I most often use it when I am in the end stages of a migraine when I can use my electronics, but sitting upright is too much of a challenge. My friends also frequently sit on the floor with it- one of my friends will walk into my room and immediately grab it, and frequently talks about how much they like it. Get it here.

Zipparoll
After I was in a car accident and started having more neck pain than I ever had before, I was trying every neck pillow in sight, hoping it would help me manage my pain. The ZippaRoll became a fast favorite because of the familiar smooth and supportive material, as well as the fact it could be configured into a variety of shapes, as well as keep ice packs from falling down. I used it both on its own and in conjunction with other pillows. It also works well for lower back support when in the car. Get it here.

Moon Pillow
I purchased this around the same time as the ZippaRoll when looking for neck pillows. I found that it provided phenomenal back support when I was sitting upright, and worked as a neck pillow when I was lying down. I can put it underneath my hip when sleeping on my side, or underneath my chin to make sure I don’t strain my neck while sleeping. I also use it combined with the Yogibo Support. Get it here.

StressLess
This is one of the only tools that helps my shoulder spasms, and has helped me fall asleep many nights. I found that throwing it in the microwave for a minute and setting it on my shoulders provides an amazing soothing feeling unlike anything else. When I start getting spasms while talking to friends on voice chat, they will tell me to go microwave my shoulder pillow. It can also be thrown in the freezer, but I find that my shoulder spasms are more receptive to heat. It is an aromatherapy product, but this does not bother me as I find the scent relaxing. Get it here.

BodyHug
One of the newest additions to my collection, the BodyHug is another aromatherapy pillow. I typically use this for cold therapy on my back, and it also helps with my shoulders when I am lying on my stomach. I’ve also had friends borrow it when they had very bad abdominal cramps- some preferred to warm it in the microwave for about 30 seconds, others preferred the cooling sensation. Get it here.

Yogibo Mate
This may seem like a silly choice, as it is a stuffed animal made out of Yogibo material. I got one of these when I had eye surgery in December and found that it was great to lean against and squeeze, and I could easily rest on top of it if needed. Mine is a sloth, but there are other choices. Get it here.

Cozybo
My mom had bought this for me online and had it waiting for me at home. When it came in the mail though, my brother looked at it, felt it, went “hey this is awesome,” and promptly took it upstairs to take a nap. He says if he had to choose a favorite Yogibo product, it would be this one. I’ve since gotten my own, and it’s my default choice for when I take a blanket in the car, as well as during the warm summer months. I love the smooth material and how it is the perfect weight. Get it here.

Sleepybo
Another pillow that my brother enjoys, this is a normal sized pillow filled with Yogibo material. This was awesome after my eye surgery when I had to spend a while in bed, and it is one of my favorite pillows that I own. I like to stack it with another firmer pillow on the bottom and a softer pillow on top for optimal comfort. It’s currently out of stock online, but you can find it here.

 

Some of the other products currently on my wish list include the Ms. Bliss weighted blanket, WristWiz keyboard support, Yogibo round pillow, and Yogibo cube. My brother has also wanted to try the Lukso fitted sheet, Ms. Bliss weighted blanket, SinusMinus, and Yogibo Double. We both love Yogibo products, and love stopping by the stores whenever we see one- unfortunately, the closest one is currently almost two hours away.

Overall, I can’t imagine managing my chronic pain without Yogibo. As I finish typing this, I have the StressLess in the microwave and am sitting against the Yogibo Support with the Moon Pillow while wrapped in the CozyBo. These products are amazing for my pain management, and I am always quick to recommend them when a friend is dealing with pain. These products really are that incredible.